Resources by Topic
Welcome Families & Caregivers
We’ve searched far and wide and compiled resources and links that you may find helpful. Below are links to resources regarding health, safety, therapies, grief, creating a secure future, other important area agencies, and much more.
Aging & Health
Alzheimer's Disease, Dementia & Regression
Basic Needs, Utilities, and Rent Assistance
Health Information & Guidelines
St. Luke’s Albert Pujols Wellness Center for Adults with Down Syndrome is located at Mr. and Mrs. Theodore P. Desioge, Jr. Outpatient Center in Chesterfield Missouri. This center is designed specifically for individuals with Down Syndrome who are 17 years of age or older.
The center offers:
- nutrition coaching
- exercise therapy
- social services
- classes and programs for individuals and, caregivers
For more information please contact 314-576-2300 or ADS.WellnessCenter@stlukes-stl.com.
The Down Syndrome Center is located at St. Louis Children’s Hospital and has seen hundreds of patients with Down syndrome since it opened in 2005.
The Down Syndrome Center at St. Louis Children’s Hospital is a comprehensive and multidisciplinary clinic focusing on the medical and developmental needs of children with Down syndrome. Children are evaluated from birth to 21 years of age, including prenatally diagnosed cases. When your child visits the Down Syndrome Center, he/she will be evaluated by Dr. Dorothy Grange or the CPNP. They will focus on medical and developmental issues, and screening recommendations will be completed.
The Center also collaborates with other specialties as needed: Cardiology, Ophthalmology, ENT, Audiology, Therapy Services, Dietitian and Social Services. The Center also works with additional specialties such as Endocrine, GI, Neurology and Orthopedic Surgery. Our goal is to optimize the quality of life for your child by offering comprehensive individualized care in one setting.
The Center will make it simpler for you by:
- Arranging appointments at one location with the specialists your child needs to see.
- Arranging your appointments in the most efficient manner so you and your child gain the maximum benefit.
- Using a collaborative approach because our team of experienced caregivers is in one location.
The Down Syndrome Center is located at St. Louis Children’s Hospital, 2nd Floor, Suite 2C.
For more information please contact 800.678.5437 or 314.454.6093 or firstname.lastname@example.org.
Mental Health Resources
Puberty and Sexuality
Therapy- Physical Therapy in the Early Years
Therapy- Speech Therapy in the Early Years
Affiliates and Partnered Organizations
Private Facebook Groups
We have several private groups on Facebook you can join to connect with other families, and share resources, strategies, and stories with one another.
-The Sharing Our Strategies Group is for parents and caregivers of individuals with Down syndrome of all ages, to ask questions and share information and referrals with each other.
-The Family Resource Network Group is for families and caregivers of adults with Down syndrome 32 and older. We will celebrate our successes, ask questions, share strategies, and simply connect with others on this journey of aging with Down syndrome.
-The DSAGSL Ready2Work Group was created to help provide employment opportunities and support for people with Down syndrome. Join us as we share information and opportunities to support people with Down syndrome looking for a job!
You can also follow DSAGSL on Facebook and Instagram for updates on events, programs, services, resources, and news that benefit the lives of individuals with Down syndrome, and we also have a YouTube channel with tons of great videos!