For Healthcare Professionals
Medical Professionals Packet
Current Research
The Ances Laboratory at Washington University School of Medicine in St. Louis is a neuroscience research lab focused on developing neuroimaging biomarkers of normal aging and neurodegeneration including Alzheimer’s Disease and Down syndrome, and evaluating therapeutic interventions that will improve neurocognitive deficits and biomarkers associated with neurodegenerative disorders.
DS-Connect is the Down syndrome registry. This website allows information to be shared among families, patients, researchers, and parent groups. Family members or individuals with Down syndrome are able to enter their health history and contact information into a confidential database.
Global Down Syndrome Foundation provides information on research grants for Down syndrome and the importance of research for individuals with Down syndrome.
Stanford University is conducting a new research study on individuals with Down syndrome. This research study is conducted by Dr. Ahmad Salehi. The focus of this study is on a therapeutic strategy for intellectual disability in Down syndrome.
LuMind Research Down Syndrome Foundation stimulates biomedical research that will accelerate the development of treatments to significantly improve cognition in individuals with Down syndrome.
Aging & Health
- DSAGSL Adult Services Toolkit
- A Healthy Future Conference: Care of Self, Care of Others by Connie Fisher
- A Healthy Future Conference: Mental Wellness by Dr. Brian Chicoine
- A Healthy Future Conference: Promoting Physical Health and Health Care Guidelines by Dr. Cynthia Poelker
- Adult Care Professional Presentation
- Aging and Down Syndrome A Health and Well-Being Guidebook
- GLOBAL Medical Care Guidelines for Adults with Down Syndrome
- Health Care for Adults with Down Syndrome
- Health Care Guidelines – Adults with Down Syndrome - NDSS
- Healthy Lifestyles in Adults with Down Syndrome
- Licensed Adult Day Care
- National Institute on Aging
- Promoting Health in Adults
- Self-Talk in Adults with Down Syndrome
Alzheimer's Disease, Dementia & Regression
- A Healthy Future Conference: Regression and Catatonia by Dr. Judith Miles
- Alzheimer's Disease in People with Down Syndrome - National Institute on Aging
- Caregiver's Guide to Down Syndrome and Alzheimer's Disease - NDSS
- Decline in Skills and Regression in Adolescents and Adults with Down Syndrome - Webinar
- DSAGSL Alzheimer's, Dementia, and Regression Support Group
- Down Syndrome and Alzheimer's Disease - Alzheimer's Association
- Down Syndrome and Alzheimer’s Disease – NDSS
- GLOBAL Presentation: Regression in Down Syndrome
- National Task Group- Early Detection Screening for Dementia (NTG-EDSD)
