For Families & Caregivers
Welcome Families & Caregivers
We’ve searched far and wide and compiled resources and links that you may find helpful. Below are links to our online library catalog, information packets on important topics, and links to outside agencies/organizations
Aging
- A Healthy Future Conference: Mental Wellness by Dr. Brian Chicoine
- A Healthy Future Conference: Care of Self, Care of Others by Connie Fisher
- A Healthy Future Conference: Regression and Catatonia by Dr. Judith Miles
- A Healthy Future Conference: Promoting Physical Health and Health Care Guidelines by Dr. Cynthia Poelker
- Adult Care Professional Presentation
- Aging and Down Syndrome A Health and Well-Being Guidebook
- Caregiver's Guide to Down Syndrome and Alzheimer's Disease - NDSS
- Down SYndrome and Alzheimer's Disease - Alzheimer's Association
- Down Syndrome and Alzheimer’s Disease – NDSS
- Health Care for Adults with Down Syndrome
- Health Care Guidelines – Adults with Down Syndrome
- Healthy Lifestyles in Adults with Down Syndrome
- Licensed Adult Day Care
- National Institute on Aging
- Promoting Health in Adults
- Self-Talk in Adults with Down Syndrome
Behavior
Disaster Preparedness
- The Red Cross- Preparing for Disaster for People with Disabilities and Other Special Needs
- Information for People with Developmental Disabilities
- Helping Those with Developmental Disabilities Prepare
- Making A Plan
- Emergency Tear Sheets
- The Access Board
- DHHS Administration on Aging
- National Council on Disability
- National Organization on Disability
- Prepare.org
- American Association for People with Disabilities
- American Foundation for the Blind
- National Association of the Deaf
- Easterseals
Dual Diagnosis
- Down Syndrome-Autism Connection
- Dual Diagnosis Overview
- Dual Diagnosis Chart
- Down Syndrome & Autism Spectrum Disorder
- St. Louis Dual Diagnosis Support Group
- Easterseals Midwest
- Autism Society of America
- Autism Speaks
- Kennedy Krieger Institute
- National Association for Dual Diagnosis (NADD)
- National Down Syndrome Society (NDSS)
- When Down Syndrome and Autism Intersect
Resource Guides
Financial Planning
- Achieving a Better Life Experience (ABLE) Act
- ABLE Act Presentation by Cathy Brown, Paraquad
- ABLE National Resource Center
- 10 Financial Steps for Caregivers
- Financial Resources for MO Children with DD
- MetLife Center for Special Needs Planning
- Midwest Special Needs Trust
- Personal Finance Guide for People with Disabilities
- Social Security Benefits
- Understanding SSI Resource Limits
- Understanding Medicaid Resource Limits
Grief
Guardianship
Inclusion
- Disability is Natural by Kathie Snow
- Does Inclusion Benefit Children without Disabilities?
- U.S. DHHS and Dept of Ed Policy on Inclusion
- Implementing Inclusion – NDSS
- Inclusion The Natural State by Kathie Snow
- Inclusion Matters by Special School District
- The Paraprofessional’s Role in Inclusion – Disability Solutions
- Summary on the Evidence on Inclusive Education
- Complete Inclusion Packet
Puberty and Sexuality
Rent, Utilities, Basic Needs Assistance
Toliet Training
Transition
Affiliates and Partnered Organizations
Additional Topics
Sharing Our Strategies
Join our mailing list to receive emails about tips and strategies on several topics such as behavior, toliet training, financial planning, visual schedules, technology, individual education plans, seasonal resources, and more.
Join the private Facebook Group- Sharing Our Strategies. This group is for parents and caregivers to ask questions, and share information and referrals with each other.
