For Families & Caregivers

Welcome Families & Caregivers

We’ve searched far and wide and compiled resources and links that you may find helpful. Below are links to our online library catalog, information packets on important topics, and links to outside agencies/organizations

Informational Packets & Links

  • Aging
  • Behavior
  • Disaster Relief
  • Dual Diagnosis
  • Education
  • Financial Planning
  • Grief
  • Guardianship
  • Inclusion
  • Puberty and Sexuality
  • Rent, Utilities, and Basic Needs Assistance
  • Toliet Training
  • Transition

Affiliates and Partnered Organizations

  • Down Syndrome Affiliates in Action
  • Global Down Syndrome Foundation
  • St. Louis Region IDD Help Line- or call 1-877-256-2202
  • National Down Syndrome Congress (NDSC)
  • National Down Syndrome Society (NDSS)
  • National Down Syndrome Adoption Network (NDSAN)

Other Resources

  • Down Syndrome Association of Greater St. Louis Resource Packet

Sharing Our Strategies

Join our mailing list to receive emails about tips and strategies about topics such as behavior, toliet training, visual schedules, technology, individual education plans, and more. 

Join the private Facebook Group- Sharing Our Strategies.  This group is for parents and caregivers to ask questions, and share information and referrals with each other