Community Groups
Welcome Families & Caregivers
Community Groups provide information, resources, and support to families connected to the group. They groups are based on location, age, relationship to the person with Down syndrome, culture, and/or native language. The groups run independently of each other, and are supported by the Down Syndrome Association of Greater St. Louis. Each of our Community Groups has a unique personality and strives to serve the families involved.
MISSOURI COMMUNITY GROUPS
Heartland Community Group
Serves: Southeast Missouri and Southern Illinois
Meetings: 2nd Saturday of each month, 10:00a-12:00p at Cape Girardeau Public Library in the Penzel Room
Main Contact: Clair Watson – 573.334.5685
heartland_cg@dsagsl.org – facebook.com/heartlandDSA
Kirkwood/ Webster/South County Moms Community Group
Serves: Kirkwood, Webster, and Surrounding areas
Main Contact: Stephanie Holmes – 314.495.8388 and Cheri Nienhaus – 618.570.8485
kirkwood_cg@dsagsl.org
Dads Appreciating Down Syndrome (DADS)
Serves: the Greater St. Louis area
Main Contact: Tony Sorocko – 314.393.8548
dadsstl@outlook.com
Down Syndrome Community Group of Upstate Missouri
Serves: Kirksvilled, Brookfield and surrounding areas
Meetings: various times and locations
Main Contact: Becky Pike – 660.651.5139
kirksville_cg@dsagsl.org – facebook.com/dscnemo
North County & North City Community Group
Serves: North St. Louis County and St. Louis City
Main Contact: This group has recently changed leadership. Stay tuned for more information.
St. Charles County Community Group
Serves: St. Charles, West County, and surrounding areas
Main Contact: This group is looking for new leadership! Please contact Abigail@dsagsl.org for more information.
stc_cg@dsagsl.org – facebook.com/stcdsgroup
ILLINOIS COMMUNITY GROUPS
Metro-East Down Syndrome Alliance (MESDA)
Serves: Bellville, O’Fallon, Shiloh, and surrounding areas
Main Contact: This group is looking for new leadership. Please contact Abigail@dsagsl.org for more information.
mesda_cg@dsagsl.org – facebook.com/MetroEastDSA
Southern Illinois Community Group
Serves: Carbondale, Creal Spring, and surrounding areas
Main Contact: Samantha Dudley – soil_cg@dsagsl.org
facebook.com/SIDownSyndromeCommunityGroup
OTHER AREA DOWN SYNDROME GROUPS
These are groups that may have their own not-for-profit 501 (c)(3) status, are in our area, are close and valued partners of the DSAGSL, and who often have overlapping membership
Down Syndrome Guild of Central Missouri
Serves: Columbia, Jefferson City, Central Missouri
Main Contact: Jessica Fahey- Program Coordinator, 913.384.4848
www.facebook.com/centralmodsfamilynetwork
Down Syndrome Group of the Ozarks
Serves: Springfield, MO and surrounding areas
Main Contact: info@ozarksdsg.org, 417.885.9905 or 888.655.5173
www.dsgo.life | www.facebook.com/dsgo.life
Lincoln Land Down Syndrome Society
Serves: Springfield, IL and surrounding areas
Main Contact: lldss@comcast.net, 217.415.8716
www.lldss.org
www.facebook.com/lincolnlanddownsyndromesociety
Central Illinois Down Syndrome Oranization
Serves: McLean County, Bloomington/Normal, and surrounding areas
Main Contact: info@cidso.org, 309.452.3264
www.cidso.org | www.facebook.com/CIDSO.org
Riverbend Down Syndrome Association
Serves: Southwest Illinois
Meetings: Fourth Monday of each month, 6:30-8:00p at LeClaire Christian Church, 1914 Esic Drive, Edwardsville, IL 62025
Main Contact: Secretary@riverbendds.org
www.facebook.com/riverbendds
Down Country
Serves: Hannibal, Palmyra, Quincy, and surrounding areas
Main Contact: info@upatdowncountry.com, 217.617.3568
www.upatdowncountry.com
www.facebook.com/upatdowncountry
Heart of Illinois Down Syndrome Association
Serves: Peoria County, Tazewell County, and surrounding areas
Main Contact: info@hoidsa.org, 309.712.4852
www.hoidsa.org | www.facebook.com/HOIDSA
Down Syndrome Support Group - Blessing Hospital
Meetings: last Monday of every month at 6:30pm at 11th Street Auditorium at Blessing Hospital
Main Contact: 217.223.8400 x4190
Community Group Events
North County / North City Community Group
September 25, 2021 from 1:00-2:00 | New Group Leader Event | DSAGSL Office, 1300 Strassner Drive in Brentwood
You can RSVP for the in-person event at the DSAGSL Office, join on Zoom, or fill out a short survey. There are lots of ways to participate and give your feedback!
