Welcome Families & Caregivers

Community Groups provide information, resources, and support to families connected to the group.  They groups are based on location, age, relationship to the person with Down syndrome, culture, and/or native language.  The groups run independently of each other, and are supported by the Down Syndrome Association of Greater St. Louis.  Each of our Community Groups has a unique personality and strives to serve the families involved. 


African American Community Group

Serves: Families in the Greater St. Louis area

Main Contact: Makini Anwisye – 314.961.2504


facebook.com/dsagsl | dsagsl.org

Dads Appreciating Down Syndrome (DADS) Group

Serves: Dads in the Greater St. Louis area

Main Contact: Tony Sorocko – 314.393.8548


Down syndrome & Autism Dual Diagnosis Group

Serves: Families in the Greater St. Louis area

Main Contact: Christy Klaus – 314.961.2504

christy@dsagsl.org | facebook.com/dsagsl | dsagsl.org

Family Resource Network

Serves: Parents & Caregivers of adults with Down syndrome 21+ in the Greater St. Louis area

Main Contact: Makini Anwisye – 314.833.7586

makini@dsagsl.org | facebook.com/dsagsl | dsagsl.org

Let's Play! Community Group for Littles

Serves: Families in the Greater St. Louis area with babies, toddlers, and children preK – grade 6

Main Contact: Laura Vrabel – 717.525.2144

vrabellaura@gmail.com | facebook.com/groups/dsagslplaygroup

Moms Group

Serves: Moms in the Greater St. Louis area

Main Contact: Linda Kamphorst – 314.833.8214

linda@dsagsl.org | facebook.com/dsagsl

This group is looking for new leadership. Please contact Abigail@dsagsl.org for more information.


Down Syndrome Community Group of Upstate Missouri

Serves: Kirksville, Brookfield and surrounding areas

Main Contact: Becky Pike – 660.651.5139

kirksville_cg@dsagsl.org – facebook.com/dscnemo

Heartland Community Group

Serves: Southeast Missouri and Southern Illinois

Main Contact: Claire Watson – 573.334.5685 

heartland_cg@dsagsl.org – facebook.com/heartlandDSA

Metro-East Down Syndrome Alliance (MESDA)

Serves: Belleville, O’Fallon, Shiloh, and surrounding areas

Main Contact: Erin Perez – 618.660.6045


St. Charles County Community Group

Serves: St. Charles, West County, and surrounding areas

Main Contact: Judy Dodge – 314.954.6448

judyd772@gmail.com | facebook.com/groups/dsagslstcharlescounty

Southern Illinois Community Group

Serves: Carbondale, Creal Spring, and surrounding areas

Main Contact: Samantha Dudley – soil_cg@dsagsl.org 



These are groups that may have their own not-for-profit 501 (c)(3) status, are in our area, are close and valued partners of the DSAGSL, and who often have overlapping membership

Down Syndrome Guild of Central Missouri

Serves: Columbia, Jefferson City, Central Missouri

Main Contact: Jessica Fahey- Program Coordinator,  913.384.4848 


Down Syndrome Group of the Ozarks

Serves: Springfield, MO and surrounding areas

Main Contact: info@ozarksdsg.org,  417.885.9905 or 888.655.5173 

www.dsgo.life | www.facebook.com/dsgo.life

Lincoln Land Down Syndrome Society

Serves: Springfield, IL and surrounding areas

Main Contact: lldss@comcast.net, 217.415.8716



Central Illinois Down Syndrome Organization

Serves: McLean County, Bloomington/Normal, and surrounding areas

Main Contact: info@cidso.org, 309.452.3264 

www.cidso.org | www.facebook.com/CIDSO.org

Riverbend Down Syndrome Association

Serves: Southwest Illinois

Meetings: Fourth Monday of each month, 6:30-8:00p at LeClaire Christian Church, 1914 Esic Drive, Edwardsville, IL 62025

Main Contact: Secretary@riverbendds.org


Down Country

Serves: Hannibal, Palmyra, Quincy, and surrounding areas 

Main Contact: info@upatdowncountry.com, 217.617.3568



Heart of Illinois Down Syndrome Association

Serves: Peoria County, Tazewell County, and surrounding areas

Main Contact: info@hoidsa.org, 309.712.4852 

www.hoidsa.org | www.facebook.com/HOIDSA


Down Syndrome Support Group - Blessing Hospital

Meetings:  last Monday of every month at 6:30pm at 11th Street Auditorium at Blessing Hospital

Main Contact: 217.223.8400 x4190