Community Groups

Community Groups provide information, resources, and support to families connected to the group.  They groups are based on location, age, relationship to the person with Down syndrome, culture, and/or native language.  

The groups run independently of each other, and are supported by the Down Syndrome Association of Greater St. Louis.  Each of our Community Groups has a unique personality and strives to serve the families involved. 

DSAGSL Southern Illinois Community Group

Serves: Carbondale, Creal Spring, and surrounding areas

Main Contact: Abigail Bosslet | abigail@dsagsl.org | 314.833.7560

Facebook: www.facebook.com/SIDownSyndromeCommunityGroup

DSAGSL Jefferson County Community Group

Serves: Jefferson County and surrounding areas

Main Contact: Jordan Watkins | jordan@dsagsl.org | 314.470.4469

DSAGSL Heartland Community Group

Serves: Southeast Missouri including Ste. Genevieve, Perryville, Cape Girardeau, and surrounding areas

Main Contact: Maria Marzuco | SE Missouri Program Coordinator | Maria@dsagsl.org

Claire Watson  | Community Group Leader | heartland_cg@dsagsl.org

Facebook: www.facebook.com/heartlandDSA

DSAGSL Upstate Missouri Community Group

Serves: Kirksville, Brookfield and surrounding areas

Main Contact: Abigail Bosslet | abigail@dsagsl.org | 314.833.7560

Facebook: www.facebook.com/dscnemo

DSAGSL Black Family Network

Serves: Families in Missouri & Illinois

Main Contact: Makini Anwisye | makini@dsagsl.org | 314.833.7586

DSAGSL Down syndrome & Autism Dual Diagnosis Group

Serves: Families in Missouri & Illinois

Main Contact: Linda Kamphorst | linda@dsagsl.org | 314.833.8214

Let's Play Community Group for Littles

Serves: Families in Missouri & Illinois with babies, toddlers, and children pre K – grade 6

Main Contact: Abigail Bosslet | abigail@dsagsl.org | 314.833.7560

Facebook: www.facebook.com/groups/dsagslplaygroup

Dads Appreciating Down Syndrome (DADS) Group

Serves: Dads in the Greater St. Louis area

Main Contact: Tony Sorocko | dadsstl@outlook.com | 314.393.8548

Facebook: DADS STL Facebook Group

Let's Hangout Community Group for Tweens

Serves: Families in Missouri & Illinois with Tweens around 8-14 years old

Main Contact: Abigail Bosslet | abigail@dsagsl.org | 314.833.7560

Facebook: www.facebook.com/groups/409694348040354

OTHER AREA DOWN SYNDROME GROUPS

These are groups that may have their own not-for-profit 501 (c)(3) status, are in our area, are close and valued partners of the DSAGSL, and who often have overlapping membership

Down Syndrome Innovations - Central Missouri

Serves: Columbia, Jefferson City, Kansas City, Central Missouri

Main Contact: info@kcdsi.org, 913.384.4848 

www.facebook.com/centralmodsfamilynetwork

Down Syndrome Group of the Ozarks

Serves: Springfield, MO and surrounding areas

Main Contact: info@ozarksdsg.org,  417.885.9905 or 888.655.5173 

www.dsgo.life | www.facebook.com/dsgo.life

Lincoln Land Down Syndrome Society

Serves: Springfield, IL and surrounding areas

Main Contact: lldss@comcast.net, 217.415.8716

www.lldss.org

www.facebook.com/lincolnlanddownsyndromesociety

Central Illinois Down Syndrome Organization

Serves: McLean County, Bloomington/Normal, and surrounding areas

Main Contact: info@cidso.org, 309.452.3264 

www.cidso.org | www.facebook.com/CIDSO.org

Riverbend Down Syndrome Association

Serves: Southwest Illinois

Main Contact: Secretary@riverbendds.org

www.facebook.com/riverbendds

Down Country

Serves: Hannibal, Palmyra, Quincy, and surrounding areas 

Main Contact: info@upatdowncountry.com, 217.617.3568

www.upatdowncountry.com 

www.facebook.com/upatdowncountry

Heart of Illinois Down Syndrome Association

Serves: Peoria County, Tazewell County, and surrounding areas

Main Contact: info@hoidsa.org, 309.712.4852 

www.hoidsa.org | www.facebook.com/HOIDSA

 

Down Syndrome Support Group - Blessing Hospital

Meetings:  last Monday of every month at 6:30pm at 11th Street Auditorium at Blessing Hospital

Main Contact: 217.223.8400 x4190