Community Groups

Welcome Families & Caregivers

Community Groups provide information, resources, and support to families connected to the group.  They groups are based on location, age, relationship to the person with Down syndrome, culture, and/or native language.  The groups run independently of each other, and are supported by the Down Syndrome Association of Greater St. Louis.  Each of our Community Groups has a unique personality and strives to serve the families involved. 

MISSOURI COMMUNITY GROUPS

Heartland Community Group

Serves: Southeast Missouri and Southern Illinois

Meetings: 2nd Saturday of each month, 10:00a-12:00p at Cape Girardeau Public Library in the Penzel Room

Main Contact: Clair Watson – 573.344.5685 

heartland_cg@dsagsl.org – facebook.com/heartlandDSA

Kirkwood/ Webster Community Group

Serves: Kirkwood, Webster, and Surrounding areas

Meetings: 3rd Thursday of each month at 7:00p at various locations around Kirkwood/Webster

Main Contact: Stephanie Holmes – 314.495.8388 and Cheri Nienhaus – 618.570.8485 

kirkwood_cg@dsagsl.org facebook.com/groups/kirkwoodwebstermoms/

Dads Appreciating Down Syndrome (DADS)

Serves: the Greater St. Louis area

Meeting: First Wednesday of even-numbered months, locations vary

Main Contact: Tony Sorocko – 314.393.8548

facebook.com/pages/DADS-St-Louis-Chapter  dadsstl@outlook.com 

St. Charles County Community Group

Serves: St. Charles, West County, and surrounding areas

Meeting: Monthly at various locations

Main Contact: Karen Ryan – 314.795.1419

stc_cg@dsagsl.org – facebook.com/stcdsgroup 

Down Syndrome Community Group of Upstate Missouri

Serves: Kirksvilled, Brookfield and surrounding areas

Meetings: various times and locations

Main Contact: Becky Pike – 660.651.5139

kirksville_cg@dsagsl.org – facebook.com/dscnemo

North County & North City Community Group

Serves: North St. Louis County and St. Louis City

Meetings: various times and locations

Main Contact: Sergei Marchenko – 773.817.7054

SYNERGY DSAGSL Community Group

Serves: South County, Jefferson County, St. Louis City

Meetings: Family and Friends Fun Night on the second Wednesday of every month – Incredible Pizza, 5254 S Lindbergh Blvd., St. Louis, MO 63126

Main Contact: Eileen Roth – 636.212.1695

DennisRothSTL@yahoo.com

Down Syndrome Group of the Lake of the Ozarks

Serves: Camdenton, MO and surrounding areas

Looking for New Leadership: If you are interested in leading this group, please contact Family Support Coordinator, Christy Klaus – christy@dsagsl.org

ILLINOIS COMMUNITY GROUPS

Metro-East Down Syndrome Alliance (MESDA)

Serves: Bellville, O’Fallon, Shiloh, and surrounding areas

Main Contact: Bob Lutz – 314.458.6918,  Amanda Lutz – 618.789.3664, and Amanda Joyce – 314.593.0092

mesda_cg@dsagsl.org – facebook.com/MetroEastDSA

Southern Illinois Community Group

Serves: Carbondale, Creal Spring, and surrounding areas

Main Contact: Samantha Dudley – soil_cg@dsagsl.org 

facebook.com/SIDownsyndromesupportgroups

OTHER AREA DOWN SYNDROME GROUPS

These are groups that may have their own not-for-profit 501 (c)(3) status, are in our area, are close and valued partners orf the DSAGSL, and who often have overlapping membership

Down Syndrome Guild of Central Missouri

Serves: Columbia, Jefferson City, Central Missouri

Main Contact: Jessica Fahey- Program Coordinator,  913.384.4848 

www.kcdsg.org/dsg-central-missouri.php

Down Syndrome Group of the Ozarks

Serves: Springfield, MO and surrounding areas

Main Contact: info@ozarksdsg.org,  417.885.9905 or 888.655.5173 

www.ozarksdsg.org

Lincoln Land Down Syndrome Society

Serves: Springfield, IL and surrounding areas

Main Contact: lldss@comcast.net, 217.415.8716

www.lldss.org 

facebook.com/lincolnlanddownsyndromesociety

Central Illinois Down Syndrome Oranization

Serves: McLean County, Bloomington/Normal, and surrounding areas

Main Contact: info@cidso.org, 309.452.3264 

www.cidso.org

Riverbend Down Syndrome Association

Serves: Southwest Illinois

Meetings: Fourth Monday of each month, 6:30-8:00p at LeClaire Christian Church, 1914 Esic Drive, Edwardsville, IL 62025

Main Contact: Secretary@riverbendds.org, riverbendds.org

Down County

Serves: Hannibal, Palmyra, Quincy, and surrounding areas 

Main Contact: info@upatdowncountry.com, 217.617.3568

www.upatdowncountry.com facebook.com/upatdowncountry

Down Syndrome Support Group - Blessing Hospital

Meetings:  last Monday of every month at 6:30pm at 11th Street Auditorium at Blessing Hospital

Main Contact: 217.223.8400 x4190