Community Groups

Community Groups provide information, resources, and support to families connected to the group.  They groups are based on location, age, relationship to the person with Down syndrome, culture, and/or native language.  

The groups run independently of each other, and are supported by the Down Syndrome Association of Greater St. Louis.  Each of our Community Groups has a unique personality and strives to serve the families involved. 

DSAGSL St. Charles County Community Group

Serves: St. Charles, West County, and surrounding areas

Main Contact: Abigail Bosslet | abigail@dsagsl.org | 314.833.7560

Facebook: www.facebook.com/groups/dsagslstcharlescounty

DSAGSL Metro-East Illinois Community Group

Serves: Belleville, O’Fallon, Shiloh, and surrounding areas

Main Contact: Abigail Bosslet | abigail@dsagsl.org | 314.833.7560

Facebook: www.facebook.com/DSAGSLMetroEastCommunityGroup

DSAGSL Southern Illinois Community Group

Serves: Carbondale, Creal Spring, and surrounding areas

Main Contact: Abigail Bosslet | abigail@dsagsl.org | 314.833.7560

Facebook: www.facebook.com/SIDownSyndromeCommunityGroup

DSAGSL Jefferson County Community Group

Serves: Jefferson County and surrounding areas

Main Contact: Abigail Bosslet | abigail@dsagsl.org | 314.833.7560

DSAGSL Southeast Missouri Community Group

Serves: Southeast Missouri including Ste. Genevieve, Perryville, Cape Girardeau, and surrounding areas

Main Contact: Claire Watson  | heartland_cg@dsagsl.org | 573.334.5685

Facebook: www.facebook.com/heartlandDSA

DSAGSL Upstate Missouri Community Group

Serves: Kirksville, Brookfield and surrounding areas

Main Contact: Abigail Bosslet | abigail@dsagsl.org | 314.833.7560

Facebook: www.facebook.com/dscnemo

DSAGSL Black Family Network

Serves: Families in Missouri & Illinois

Main Contact: Makini Anwisye | makini@dsagsl.org | 314.833.7586

Dads Appreciating Down Syndrome (DADS) Group

Serves: Dads in the Greater St. Louis area

Main Contact: Tony Sorocko | dadsstl@outlook.com | 314.393.8548

Facebook: DADS STL Facebook Group

DSAGSL Moms Group

Serves: Moms in the Greater St. Louis area

Main Contact: Linda Kamphorst | linda@dsagsl.org | 314.833.8214

DSAGSL Down syndrome & Autism Dual Diagnosis Group

Serves: Families in Missouri & Illinois

Main Contact: Linda Kamphorst | linda@dsagsl.org | 314.833.8214

DSAGSL Adult Family Resource Network

Serves: Parents & Caregivers of adults 21+ in Missouri & Illinois

Main Contact: Makini Anwisye | makini@dsagsl.org | 314.833.7586

Facebook: www.facebook.com/groups/dsagslfamilyresourcenetwork

Circle of Friends Community Group for Teens & Adults

Serves: Families in Missouri & Illinois with teens and adults

Main Contact: Abigail Bosslet | abigail@dsagsl.org | 314.833.7560

Let's Play Community Group for Littles

Serves: Families in Missouri & Illinois with babies, toddlers, and children pre K – grade 6

Main Contact: Abigail Bosslet | abigail@dsagsl.org | 314.833.7560

Facebook: www.facebook.com/groups/dsagslplaygroup

OTHER AREA DOWN SYNDROME GROUPS

These are groups that may have their own not-for-profit 501 (c)(3) status, are in our area, are close and valued partners of the DSAGSL, and who often have overlapping membership

Down Syndrome Innovations - Central Missouri

Serves: Columbia, Jefferson City, Kansas City, Central Missouri

Main Contact: info@kcdsi.org, 913.384.4848 

www.facebook.com/centralmodsfamilynetwork

Down Syndrome Group of the Ozarks

Serves: Springfield, MO and surrounding areas

Main Contact: info@ozarksdsg.org,  417.885.9905 or 888.655.5173 

www.dsgo.life | www.facebook.com/dsgo.life

Lincoln Land Down Syndrome Society

Serves: Springfield, IL and surrounding areas

Main Contact: lldss@comcast.net, 217.415.8716

www.lldss.org

www.facebook.com/lincolnlanddownsyndromesociety

Central Illinois Down Syndrome Organization

Serves: McLean County, Bloomington/Normal, and surrounding areas

Main Contact: info@cidso.org, 309.452.3264 

www.cidso.org | www.facebook.com/CIDSO.org

Riverbend Down Syndrome Association

Serves: Southwest Illinois

Main Contact: Secretary@riverbendds.org

www.facebook.com/riverbendds

Down Country

Serves: Hannibal, Palmyra, Quincy, and surrounding areas 

Main Contact: info@upatdowncountry.com, 217.617.3568

www.upatdowncountry.com 

www.facebook.com/upatdowncountry

Heart of Illinois Down Syndrome Association

Serves: Peoria County, Tazewell County, and surrounding areas

Main Contact: info@hoidsa.org, 309.712.4852 

www.hoidsa.org | www.facebook.com/HOIDSA

 

Down Syndrome Support Group - Blessing Hospital

Meetings:  last Monday of every month at 6:30pm at 11th Street Auditorium at Blessing Hospital

Main Contact: 217.223.8400 x4190