Community Groups
Community Groups provide information, resources, and support to families connected to the group. They groups are based on location, age, relationship to the person with Down syndrome, culture, and/or native language.
The groups run independently of each other, and are supported by the Down Syndrome Association of Greater St. Louis. Each of our Community Groups has a unique personality and strives to serve the families involved.
DSAGSL St. Charles County Community Group
Serves: St. Charles, West County, and surrounding areas
Main Contact: Abigail Bosslet | abigail@dsagsl.org | 314.833.7560
DSAGSL Metro-East Illinois Community Group
Serves: Belleville, O’Fallon, Shiloh, and surrounding areas
Main Contact: Abigail Bosslet | abigail@dsagsl.org | 314.833.7560
DSAGSL Southern Illinois Community Group
Serves: Carbondale, Creal Spring, and surrounding areas
Main Contact: Abigail Bosslet | abigail@dsagsl.org | 314.833.7560
DSAGSL Jefferson County Community Group
Serves: Jefferson County and surrounding areas
Main Contact: Abigail Bosslet | abigail@dsagsl.org | 314.833.7560
DSAGSL Southeast Missouri Community Group
Serves: Southeast Missouri including Ste. Genevieve, Perryville, Cape Girardeau, and surrounding areas
Main Contact: Maria Marzuco | SE Missouri Program Coordinator | Maria@dsagsl.org
Claire Watson | Community Group Leader | heartland_cg@dsagsl.org
Facebook: www.facebook.com/heartlandDSA
DSAGSL Upstate Missouri Community Group
Serves: Kirksville, Brookfield and surrounding areas
Main Contact: Abigail Bosslet | abigail@dsagsl.org | 314.833.7560
Facebook: www.facebook.com/dscnemo
DSAGSL Black Family Network
Serves: Families in Missouri & Illinois
Main Contact: Makini Anwisye | makini@dsagsl.org | 314.833.7586
Dads Appreciating Down Syndrome (DADS) Group
Serves: Dads in the Greater St. Louis area
Main Contact: Tony Sorocko | dadsstl@outlook.com | 314.393.8548
Facebook: DADS STL Facebook Group
DSAGSL Moms Group
Serves: Moms in the Greater St. Louis area
Main Contact: Linda Kamphorst | linda@dsagsl.org | 314.833.8214
DSAGSL Down syndrome & Autism Dual Diagnosis Group
Serves: Families in Missouri & Illinois
Main Contact: Linda Kamphorst | linda@dsagsl.org | 314.833.8214
DSAGSL Adult Family Resource Network
Serves: Parents & Caregivers of adults 21+ in Missouri & Illinois
Main Contact: Makini Anwisye | makini@dsagsl.org | 314.833.7586
Facebook: www.facebook.com/groups/dsagslfamilyresourcenetwork
Circle of Friends Community Group for Teens & Adults
Serves: Families in Missouri & Illinois with teens and adults
Main Contact: Abigail Bosslet | abigail@dsagsl.org | 314.833.7560
Let's Play Community Group for Littles
Serves: Families in Missouri & Illinois with babies, toddlers, and children pre K – grade 6
Main Contact: Abigail Bosslet | abigail@dsagsl.org | 314.833.7560
Facebook: www.facebook.com/groups/dsagslplaygroup
OTHER AREA DOWN SYNDROME GROUPS
These are groups that may have their own not-for-profit 501 (c)(3) status, are in our area, are close and valued partners of the DSAGSL, and who often have overlapping membership
Down Syndrome Innovations - Central Missouri
Serves: Columbia, Jefferson City, Kansas City, Central Missouri
Main Contact: info@kcdsi.org, 913.384.4848
www.facebook.com/centralmodsfamilynetwork
Down Syndrome Group of the Ozarks
Serves: Springfield, MO and surrounding areas
Main Contact: info@ozarksdsg.org, 417.885.9905 or 888.655.5173
www.dsgo.life | www.facebook.com/dsgo.life
Lincoln Land Down Syndrome Society
Serves: Springfield, IL and surrounding areas
Main Contact: lldss@comcast.net, 217.415.8716
www.lldss.org
www.facebook.com/lincolnlanddownsyndromesociety
Central Illinois Down Syndrome Organization
Serves: McLean County, Bloomington/Normal, and surrounding areas
Main Contact: info@cidso.org, 309.452.3264
www.cidso.org | www.facebook.com/CIDSO.org
Riverbend Down Syndrome Association
Serves: Southwest Illinois
Main Contact: Secretary@riverbendds.org
www.facebook.com/riverbendds
Down Country
Serves: Hannibal, Palmyra, Quincy, and surrounding areas
Main Contact: info@upatdowncountry.com, 217.617.3568
www.upatdowncountry.com
www.facebook.com/upatdowncountry
Heart of Illinois Down Syndrome Association
Serves: Peoria County, Tazewell County, and surrounding areas
Main Contact: info@hoidsa.org, 309.712.4852
www.hoidsa.org | www.facebook.com/HOIDSA
Down Syndrome Support Group - Blessing Hospital
Meetings: last Monday of every month at 6:30pm at 11th Street Auditorium at Blessing Hospital
Main Contact: 217.223.8400 x4190
