Community Groups

Welcome Families & Caregivers

Community Groups provide information, resources, and support to families connected to the group.  They groups are based on location, age, relationship to the person with Down syndrome, culture, and/or native language.  The groups run independently of each other, and are supported by the Down Syndrome Association of Greater St. Louis.  Each of our Community Groups has a unique personality and strives to serve the families involved. 

MISSOURI COMMUNITY GROUPS

Heartland Community Group

Serves: Southeast Missouri and Southern Illinois

Meetings: 2nd Saturday of each month, 10:00a-12:00p at Cape Girardeau Public Library in the Penzel Room

Main Contact: Clair Watson – 573.344.5685 

heartland_cg@dsagsl.org – facebook.com/heartlandDSA

Central Missouri Down Syndrome Family Network

Serves: Jefferson City area

Meetings: dates and times vary

Main Contact: Kate Basi (Columbia) – 573.449.8342    Nancy Parsons (Ashland) – 573.864.6223 and Paula Backues (Jefferson City) – 573.230.7230  

centralmodsfamilynetwork@gmail.com facebook.com/centralmodsfamilynetwork

Kirkwood/ Webster Community Group

Serves: Kirkwood, Webster, and Surrounding areas

Meetings: 3rd Thursday of each month at 7:00p at various locations around Kirkwood/Webster

Main Contact: Stephanie Holmes – 314.495.8388 and Cheri Nienhaus – 618.570.8485 

kirkwood_cg@dsagsl.org facebook.com/groups/kirkwoodwebstermoms/

Dadds Appreciating Down Syndrome (DADS)

Serves: the Greater St. Louis area

Meeting: First Wednesday of even-numbered months, locations vary

Main Contact: Tony Sorocko – 314.393.8548

facebook.com/pages/DADS-St-Louis-Chapter  dadsstl@outlook.com 

Down Syndrome Community Group of Northern Central Missouri

Serves: Kirksvilled, Brookfield and surrounding areas

Meetings: various times and locations

Main Contact: Becky Pike – 660.651.5139

kirksville_cg@dsagsl.org – facebook.com/dscnemo

North County & North City Community Group

Serves: North St. Louis County and St. Louis City

Meetings: various times and locations

Main Contact: Andrika White – 314.587.6571

north_cg@dsagsl.org – facebook.com/NCDCSG.STL/

SYNERGY DSAGSL Community Group

Serves: South County, Jefferson County, St. Louis City

Meetings: Family and Friends Fun Night on the second Wednesday of every month – Incredible Pizza, 5254 S Lindbergh Blvd., St. Louis, MO 63126

Main Contact: Eileen Roth – 636.326.1787

DennisRothSTL@yahoo.com

Down Syndrome Group of the Lake of the Ozarks

Serves: Camdenton, MO and surrounding areas

Looking for New Leadership: If you are interested in leading this group, please contact Family Support Coordinator, Christy Klaus – christy@dsagsl.org

St. Charles County Community Group

Serves: St. Charles, West County, and surrounding areas

Meeting: Monthly at various locations

Main Contact: Karen Ryan – 314.795.1419

stc_cg@dsagsl.org – facebook.com/stcdsgroup 

ILLINOIS COMMUNITY GROUPS

Metro-East Down Syndrome Alliance (MESDA)

Serves: Bellville, O’Fallon, Shiloh, and surrounding areas

Meetings: Second Monday of each month, September through May, 6:00-8:00p at Cornerstone Christian Church, 775 N Green Mount Rd., Shiloh, IL, 62221

Main Contact: Bob Lutz – 314.458.6918 & Amanda Lutz – 618.789.3664 

mesda_cg@dsagsl.org – facebook.com/MetroEastDSA

Southern Illinois Community Group

Serves: Carbondale, Creal Spring, and surrounding areas

Meetings: Various dates and locations

Main Contact: Julie Anderson – 618.944.1115

facebook.com/pages/southern-illinois-down-syndrome  soil_cg@dsagsl.org

OTHER AREA DOWN SYNDROME GROUPS

These are groups that may have their own not-for-profit 501 (c)(3) status, are in our area, are close and valued partners orf the DSAGSL, and who often have overlapping membership

Down Syndrome Group of the Ozarks

Serves: Springfield, MO and surrounding areas

Main Contact: info@ozarksdsg.org – 417.885.9905 or 888.655.5173

www.ozarksdsg.org

Lincoln Land Down Syndrome Society

Serves: Springfield, IL and surrounding areas

Main Contact: info@ozarksdsg.org – 417.885.9905 or 888.655.5173

www.ozarksdsg.org

Central Illinois Down Syndrome Oranization

Serves: McLean County, Bloomington/Normal, and surrounding areas

Main Contact: info@cidso.org – 309.452.3264

www.cidso.org

Riverbend Down Syndrome Association

Serves: Southwest Illinois

Meetings: Fourth Monday of each month, 6:30-8:00p at LeClaire Christian Church, 1914 Esic Drive, Edwardsville, IL 62025

Main Contact: Secretary@riverbendds.org – 618.288.2555

www.riverbendds.org

Down County

Serves: Hannibal, Palmyra, Quincy, and surrounding areas 

Main Contact: info@upatdowncountry.com – 217.617.3568

www.upatdowncountry.com facebook.com/upatdowncountry