Community Groups

Welcome Families & Caregivers

Community Groups provide information, resources, and support to families connected to the group.  They groups are based on location, age, relationship to the person with Down syndrome, culture, and/or native language.  The groups run independently of each other, and are supported by the Down Syndrome Association of Greater St. Louis.  Each of our Community Groups has a unique personality and strives to serve the families involved. 

MISSOURI COMMUNITY GROUPS

Heartland Community Group

Serves: Southeast Missouri and Southern Illinois

Meetings: 2nd Saturday of each month, 10:00a-12:00p at Cape Girardeau Public Library in the Penzel Room

Main Contact: Clair Watson – 573.334.5685 

heartland_cg@dsagsl.org – facebook.com/heartlandDSA

Kirkwood/ Webster/South County Moms Community Group

Serves: Kirkwood, Webster, and Surrounding areas

Main Contact: Stephanie Holmes – 314.495.8388 and Cheri Nienhaus – 618.570.8485 

kirkwood_cg@dsagsl.org

Dads Appreciating Down Syndrome (DADS)

Serves: the Greater St. Louis area

Main Contact: Tony Sorocko – 314.393.8548

dadsstl@outlook.com 

Down Syndrome Community Group of Upstate Missouri

Serves: Kirksvilled, Brookfield and surrounding areas

Meetings: various times and locations

Main Contact: Becky Pike – 660.651.5139

kirksville_cg@dsagsl.org – facebook.com/dscnemo

North County & North City Community Group

Serves: North St. Louis County and St. Louis City

Main Contact: This group has recently changed leadership. Stay tuned for more information.

St. Charles County Community Group

Serves: St. Charles, West County, and surrounding areas

Main Contact: This group is looking for new leadership! Please contact Abigail@dsagsl.org for more information.

stc_cg@dsagsl.org – facebook.com/stcdsgroup 

ILLINOIS COMMUNITY GROUPS

Metro-East Down Syndrome Alliance (MESDA)

Serves: Bellville, O’Fallon, Shiloh, and surrounding areas

Main Contact: This group is looking for new leadership.  Please contact Abigail@dsagsl.org for more information.

mesda_cg@dsagsl.org – facebook.com/MetroEastDSA

Southern Illinois Community Group

Serves: Carbondale, Creal Spring, and surrounding areas

Main Contact: Samantha Dudley – soil_cg@dsagsl.org 

facebook.com/SIDownSyndromeCommunityGroup

OTHER AREA DOWN SYNDROME GROUPS

These are groups that may have their own not-for-profit 501 (c)(3) status, are in our area, are close and valued partners of the DSAGSL, and who often have overlapping membership

Down Syndrome Guild of Central Missouri

Serves: Columbia, Jefferson City, Central Missouri

Main Contact: Jessica Fahey- Program Coordinator,  913.384.4848 

www.facebook.com/centralmodsfamilynetwork

Down Syndrome Group of the Ozarks

Serves: Springfield, MO and surrounding areas

Main Contact: info@ozarksdsg.org,  417.885.9905 or 888.655.5173 

www.dsgo.life | www.facebook.com/dsgo.life

Lincoln Land Down Syndrome Society

Serves: Springfield, IL and surrounding areas

Main Contact: lldss@comcast.net, 217.415.8716

www.lldss.org

www.facebook.com/lincolnlanddownsyndromesociety

Central Illinois Down Syndrome Oranization

Serves: McLean County, Bloomington/Normal, and surrounding areas

Main Contact: info@cidso.org, 309.452.3264 

www.cidso.org | www.facebook.com/CIDSO.org

Riverbend Down Syndrome Association

Serves: Southwest Illinois

Meetings: Fourth Monday of each month, 6:30-8:00p at LeClaire Christian Church, 1914 Esic Drive, Edwardsville, IL 62025

Main Contact: Secretary@riverbendds.org

www.facebook.com/riverbendds

Down Country

Serves: Hannibal, Palmyra, Quincy, and surrounding areas 

Main Contact: info@upatdowncountry.com, 217.617.3568

www.upatdowncountry.com 

www.facebook.com/upatdowncountry

Heart of Illinois Down Syndrome Association

Serves: Peoria County, Tazewell County, and surrounding areas

Main Contact: info@hoidsa.org, 309.712.4852 

www.hoidsa.org | www.facebook.com/HOIDSA

 

Down Syndrome Support Group - Blessing Hospital

Meetings:  last Monday of every month at 6:30pm at 11th Street Auditorium at Blessing Hospital

Main Contact: 217.223.8400 x4190

Community Group Events

North County / North City Community Group

September 25, 2021 from 1:00-2:00 | New Group Leader Event | DSAGSL Office, 1300 Strassner Drive in Brentwood

You can RSVP for the in-person event at the DSAGSL Office, join on Zoom, or fill out a short survey.  There are lots of ways to participate and give your feedback!