We're Here Every Step of the Way

Down Syndrome Association of Greater St. Louis connects families, educators, medical professionals, and the community with information, programs, and resources for individuals with Down syndrome through every stage of life.

Upcoming DSAGSL Events

June 14

Infant & Toddler Playgroup

Join other littles and parents at the DSAGSL Office for fun learning activities and networking!

July 25 & 26

Education Specialist Summer Program

Sign up today to learn more about how to build meaningful educational experiences for students with Down syndrome

August 3

Rock 21 Music Program Concert

Come rock out at the Tin Roof downtown as our Rock 21 bands perform songs they’ve been practicing for 8 weeks!

September 14

Workshop: Potty Training & Behavior

This important two-part workshop for parents and families is in partnership with Children’s Hospital

If you’re new to Down syndrome we have answers.

Down syndrome occurs in approximately one in every 691 live births, making it the most frequently occurring chromosomal disorder. There are about 400,000 Americans diagnosed with Down syndrome and approximately 6,000 babies are born with Down syndrome each year in the United States.

Family Support Programs

Family support can start as early as a prenatal diagnosis. Our Expectant Parent section provides information and resources specific to those who are expecting a baby with Down syndrome. Many of our families find out that their baby has Down syndrome after birth. The New Parent section shares information about our New Parent packet and our New Parent Support Network as well as resources for Grandparents.

Advocacy & Awareness

Join us in our mission to benefit the lives of individuals with Down syndrome.

As part of our mission, we promote awareness and advocacy through events, programming and with the help of other like-minded people and organizations. We are committed to advocacy for individuals with Down syndrome and we recognize that there are two types of advocacy: personal advocacy and systems change.

Down Syndrome Education Specialist

The DSAGSL is proud to offer the Down Sydrome Education Specialist Program! This Partnership Program is a joint effort between greater St. Louis area schools, agencies, parents and the DSAGSL. The goal of the partnership is to provide support for educators, parents and professionals seeking to build a meaningful education for students with Down syndrome.