We're Here Every Step of the Way

The Down Syndrome Association of Greater St. Louis serves, supports, and celebrates the lives of individuals with Down syndrome and their families, through every stage of life.

Upcoming DSAGSL Events

Every Week

Virtual Programs

Join us on Facebook, Zoom, and YouTube for virtual programming! We have over a dozen programs for all ages and abilities. Find a full schedule, links to log in, and details on our events calendar.

May 21

Young Friends Board Spring Fling on Zoom

Dress in your best and join the Young Friends Board on Zoom for a Virtual Spring Fling!  Enjoy dancing, singing, games, and more with the Young Friends Board of DSAGSL!!  RSVP to receive the zoom link and log in information.

June 13

In honor of the third copy of the 21st chromosome, we invite you to run an in-person or virtual 5k (plus a little extra!) with us on June 13th.  The race takes place right before the Step Up for Down Syndrome event.

June 13

Step Up for Down Syndrome

Step Up for Down Syndrome is our largest celebration and fundraising event of the year!  Donations from this event allow us to provide vital  programming to over 1,800 individuals with Down syndrome and their families!

Our vision is for an inclusive community where all people with Down syndrome can achieve their full potential.

Down syndrome occurs in approximately one in every 691 live births, making it the most frequently occurring chromosomal anomaly. There are about 400,000 Americans with Down syndrome and approximately 6,000 babies are born with Down syndrome each year in the United States.

Family Support Programs

Family support can start as early as a prenatal diagnosis. Our Expectant Parent section provides information and resources specific to those who are expecting a baby with Down syndrome. Many of our families find out that their baby has Down syndrome after birth. The New Parent section has information such as our New Parent Packet and our New Parent Support Network, as well as resources for Grandparents.

Advocacy & Awareness

Join us in our mission to benefit the lives of individuals with Down syndrome

Part of our mission is to benefit the lives of people with Down syndrome through public awareness and advocacy.  We do this through events, programming and with the help of partner organizations. 

Down Syndrome Education Specialist

The DSAGSL is proud to offer the Down Sydrome Education Specialist Program! This partnership program is a joint effort between greater St. Louis area schools, agencies, parents and the DSAGSL. The goal of the partnership is to provide support for educators, parents and professionals seeking to build a meaningful education for students with Down syndrome.