We're Here Every Step of the Way

Down Syndrome Association of Greater St. Louis connects families, educators, medical professionals, and the community with information, programs, and resources for individuals with Down syndrome through every stage of life.

Upcoming DSAGSL Events


DSAGSL Virtual Programming on Facebook & Zoom

Our office may be closed, but we are still here for you every step of the way!  Join us on Facebook and Zoom for virtual programming while we are sheltering in place. Find a full schedule and details on our calendar.


#DanceForDownSyndrome Social Media Challenge

This social media challenge is fun, easy, and safe because you can do it from home!  Play “I Wanna Dance With Somebody”, do the dance, post on social media, and tag your friends!  Find the song by clicking below.

June 7

25th Anniversary Step Up for Down Syndrome

The largest celebration of Down syndrome in the St. Louis area!  Start a team, raise funds, and earn incentives like Walk in the Park tickets at Busch Stadium!  Thank you for Stepping Up for Down Syndrome!

June 7

Run for 21
a 5k plus a little extra

Do something extra for Down syndrome!  This is a 3.21 mile race (a 5k plus a little extra).  You can also choose to do a 10k or a 21 mile bike ride! After the race, enjoy the Step Up for Down Syndrome’s event!  

DSAGSL is committed to being the most comprehensive resource on
Down syndrome in the area

Down syndrome occurs in approximately one in every 691 live births, making it the most frequently occurring chromosomal anomaly. There are about 400,000 Americans with Down syndrome and approximately 6,000 babies are born with Down syndrome each year in the United States.

Dear friends and family,

The Down Syndrome Association of Greater St. Louis (DSAGSL) has and will always put the safety and well-being of the individuals we serve first.  Following all current guidelines, we have chosen to cancel, postpone, or make virtual, all programs and events of all sizes through the end of April.  In addition, the office will be closed to visitors except in case of emergency.

This decision was not taken lightly. Staff met and developed a plan to work remotely and still provide superior support to the community. As always, we will be available via phone and email during normal business hours. Our families will never go without the vital resources and support that the DSAGSL offers.

As the next few weeks unfold, please pay extra close attention to our website, social media channels, and your email inbox for more information on new dates and virtual offerings. Social distancing can’t keep us from celebrating the extraordinary lives of people with Down syndrome!

Below you will find valuable information about Down syndrome and COVID-19 from our partners and national experts LuMind IDSC Foundation, Global Down Syndrome Foundation, and the CDC. We’ve also put together a list of resources for our families in the DSAGSL Resources E-Newsletter.

Stay safe, well, and hopeful. We will see you again soon! Best Wishes,


Erin Suelmann, Executive Director


Information about Down syndrome and COVID-19

Here are resources you can rely on for accurate, up-to-date information about COVID-19 and Down syndrome. Organizations across the country are also using #T21COVID so you can search information about Down syndrome and Coronavirus on social media platforms.

Family Support Programs

Family support can start as early as a prenatal diagnosis. Our Expectant Parent section provides information and resources specific to those who are expecting a baby with Down syndrome. Many of our families find out that their baby has Down syndrome after birth. The New Parent section has information such as our New Parent Packet and our New Parent Support Network, as well as resources for Grandparents.

Advocacy & Awareness

Join us in our mission to benefit the lives of individuals with Down syndrome

Part of our mission is to benefit the lives of people with Down syndrome through public awareness and advocacy.  We do this through events, programming and with the help of partner organizations. 

Down Syndrome Education Specialist

The DSAGSL is proud to offer the Down Sydrome Education Specialist Program! This partnership program is a joint effort between greater St. Louis area schools, agencies, parents and the DSAGSL. The goal of the partnership is to provide support for educators, parents and professionals seeking to build a meaningful education for students with Down syndrome.