We're Here Every Step of the Way

Down Syndrome Association of Greater St. Louis connects families, educators, medical professionals, and the community with information, programs, and resources for individuals with Down syndrome through every stage of life.

Dear friends and family,

The Down Syndrome Association of Greater St. Louis (DSAGSL) has and will always put the safety and well-being of the individuals we serve first. In light of the recent statement from Governor Mike Parson banning social gatherings of 50 or more, and the recent guidance from the White House to avoid gathering in groups of 10 or more, we have chosen to cancel, postpone, or make virtual, all programs and events of all sizes through the end of April. This includes, but is not limited to our first African American meet up, all World Down Syndrome Day in-person gatherings, Rock 21 practices and concert, our Ds research workshop, the New Family Brunch, and our Family Picnic. In addition, the office will be closed to visitors for the next two weeks except in case of emergency.

This decision was not taken lightly. Staff met and developed a plan to work remotely and still provide superior support to the community. As always, we will be available via phone and email during normal business hours. Our families will never go without the vital resources and support that the DSAGSL offers.

As the next week unfolds, please pay extra close attention to our website, social media channels, and your email inbox for more information on new dates and virtual offerings, and please plan to join us for our Virtual World Down Syndrome Day Party! https://www.facebook.com/events/228165555030827/ Social distancing can’t keep us from celebrating the extraordinary lives of people with Down syndrome!

Below you will find valuable information about Down syndrome and COVID-19 from our partners and national experts LuMind IDSC Foundation, Global Down Syndrome Foundation, and the CDC. Stay safe, well, and hopeful. We will see you again soon!

Best Wishes,

Erin Suelmann, Executive Director

Information about Down syndrome and COVID-19

Here are resources you can rely on for accurate, up-to-date information about COVID-19 and Down syndrome. Organizations across the country are also using #T21COVID so you can search information about Down syndrome and Coronavirus on social media platforms.

Upcoming DSAGSL Events

March 21

Virtual World Down Syndrome Day Party

Join us on Facebook on Saturday, March 21 for a Virtual PJ Party!  Post pictures, videos, and anything you like to share how you are celebrating 3/21!

March 21

The Diamond Family Gives back to DSAGSL

Visit The Diamond Family on World Down Syndrome Day and 20% of your purchase will be donated to DSAGSL!  You can practice social distancing and support DSAGSL!

June 7

Step Up for Down Syndrome

The largest celebration of Down syndrome in the St. Louis area!  Join 2,500 people in Forest Park for a huge celebration and 1 mile awareness walk!

June 7

Run for 21
a 5k plus a little extra

Do something extra for Down syndrome!  This is a 3.21 mile race through beautiful Forest Park.  After the race, enjoy the Step Up for Down Syndrome celebration!

DSAGSL is committed to being the most comprehensive resource on
Down syndrome in the area

Down syndrome occurs in approximately one in every 691 live births, making it the most frequently occurring chromosomal anomaly. There are about 400,000 Americans with Down syndrome and approximately 6,000 babies are born with Down syndrome each year in the United States.

Family Support Programs

Family support can start as early as a prenatal diagnosis. Our Expectant Parent section provides information and resources specific to those who are expecting a baby with Down syndrome. Many of our families find out that their baby has Down syndrome after birth. The New Parent section has information such as our New Parent Packet and our New Parent Support Network, as well as resources for Grandparents.

Advocacy & Awareness

Join us in our mission to benefit the lives of individuals with Down syndrome

Part of our mission is to benefit the lives of people with Down syndrome through public awareness and advocacy.  We do this through events, programming and with the help of partner organizations. 

Down Syndrome Education Specialist

The DSAGSL is proud to offer the Down Sydrome Education Specialist Program! This partnership program is a joint effort between greater St. Louis area schools, agencies, parents and the DSAGSL. The goal of the partnership is to provide support for educators, parents and professionals seeking to build a meaningful education for students with Down syndrome.