Through the Eyes of a Self-Advocate

DSAGSL recently asked Down syndrome self-advocates and their families:

“What would you like the world to know about Down syndrome?”

We have received a lot of amazing and heartwarming entries for you to look forward to in the coming weeks!  Paula Mass was kind enough to tell us her wonderful story, and we are excited to be able to share it with our readers!

                                                                                                                                                      

      What would I like the world to know about me as a person of interest?

I did have a hard time answer this question almost an hour ago. I enjoy the simple things inmy life. I work through my hardship with having different relations with other people besides my own family. I want other people to notice me as a person. I do have Down syndrome. Down syndrome is important to me. That is who I am. I want peace in the world for Israel.  I want Israel to be a safe place to live in.  Israel should be equal on all different religious. I believe to be equal with different people’s culture, so other people can live in Israel.

 

What makes me a happy person with Down syndrome?

I like writing poetry, and I am creative person at heart. I enjoy doing art work at home that does make me smile a lot. Going to the art museum. Water parks are fun, too. Smelling flowers that do have a nice scent is very pleasant to me.  Having Happy dreams are good for me.

 

What does Down syndrome mean to Me?

I can think for myself. I do have a hard time eating with my mouth closed. I learn slower than other people. I scratch my head when it does get itchy. This does indicate that I can think better for myself.

 

      What would you like to tell people about having Down syndrome?

 

Certain Facts about my appearance: I am a short person. I do have problems with typing sometimes on a keyboard. Sometimes, I do go to fast without realizing it. I am a short person. 4 feet and 9 inches.  I am 32 years of age. That is short for a teenager.

I have small feet. My feet are short and narrow. I have small hands. My fingers are stubby and pulpy. I have a learning disability. I gather information slower than other people, like learning about anything that interests me.  I do get dry mouth easily. I define myself with having Down syndrome, and why I am the way that I am. I do have physical issues with my own body. I do worry about my health problem that does matter to me a lot. There are certain places I have a hard time traveling to getting on 2 separate planes at the airport that would be hard for me.  I never learned how to drive a car. But, I can drive my mother crazy sometimes.  I read slower than other people. I do get my tongue tied while I do speak English. I do not have a second language. French is off the table. I do have a hard time spelling simple words.

-Paula Mass, Self-Advocate