Fortunately, individuals with Down syndrome are living longer lives than ever before.  Unfortunately, the services these individuals need and deserve aren’t always readily available due to these being relatively newer needs.  The Down Syndrome Association of Greater St. Louis is dedicated to addressing the needs of our Active Aging Adult population.  We’ve started by organizing a support group for the caregivers of adults with Down syndrome.  This is an opportunity to discuss the unique needs of this population, as well as provide an opportunity for networking with other caregivers. The DSAGSL is proud to have a staff member on site dedicated to the needs of our aging community! Contact Makini Anwisye, Adult Services and Employment Coordinator with anything you may need at or by calling 314-833-7586.

Silver Steps Support Group

Our Silver Steps Support Group is a new and wonderful way to connect with other parents, siblings and caregivers who are taking care of an adult with Down syndrome. Typical topics discussed include housing, transportation, health, benefits, and social activities. JOIN US!  Our Silver Steps Support Group Meetings are held monthly rotating between evening and day time to accommodate all schedules. We would love to have you join us for support, resources, and sharing!  Contact with questions and to RSVP for the group!

“Futures” Workshops for Caregivers and Self-Advocates

Held in partnership with the Wellness Center for Adults with Down Syndrome, these workshops bring expert speakers and resources on topics important to the future of adults with Down syndrome and their caregivers! Held two to three times per year, typically at St. Luke’s Hospital, topics covered include physical health, mental health, fitness and nutrition, and benefits. For the complete schedule and past workshops, visit the Conferences and Seminars page of this website! If you have topic ideas, contact

Resources and Information about Aging with Down Syndrome

This page provides links, articles, presentations and videos on topics important to adults with Down syndrome and our aging community.