Down Syndrome Association of Greater St. Louis Privacy Policy

The privacy of our members and donors is a top priority. We are committed to protecting the information you give us and we do not share individual data (names, addresses, demographics) without your consent. We never sell or give our mailing lists to other organizations or individuals.

How Do We Use the Information We Collect? When you become a member of DSAGSL, donate to the organization, or request information about our services, we will ask for your name, address and e-mail address, and telephone number. We may also request some demographic information such as gender, age of the individual with Down syndrome, and information about your family. The demographic information (gender, age, etc.) may be used , in the aggregate, for reporting and grant-writing purposes. For example, we may tell a funder that 25% of our members reside in Illinois and that the median age of individuals with DS who attended our Walk in the Park was 12. We do not release individual data for reporting or funding purposes. If you request information or help for a particular individual and give permission, we may share the individual data with a parent support volunteer or another agency that may offer appropriate services.

Our Use of Web site Log Files When you visit our website we automatically log your IP address, your browser type and your access times. We need this information to conduct site performance evaluations, to see where visitors are coming from and to keep track of click stream data (the screens our users visit on our site). This helps us to determine what content our members find most appealing so that we can optimize your usage of the site. Like most Web sites, ours contains links to other Web sites. Please note that when you click on one of these links, you may be leaving the DSAGSL site and entering another Web site. These sites may independently collect or request information about you and we encourage you to read the privacy statements of these linked sites as their privacy policy may differ from ours.

Communication From time to time we may send out email messages soliciting your support, prompting a call to action, or alerting you of DSAGSL events. In addition, you may receive communications from us if you have contacted us for information or services.