Community Groups provide information, resources and emotional support to each of the families connected within the group. They are based on location, age, relationship to person with Down syndrome, culture and/or native language and run independently of each other. Each of our Community Groups has a unique personality and strive to serve the families involved.

-MISSOURI COMMUNITY GROUPS-

Heartland Community Group
Areas Served:
Southeast Missouri and Southern Illinois
Meetings: 2nd Saturday of each month, 10am – Noon

Location: Cape Girardeau Public Library, Penzel Room
Facebook: www.facebook.com/HeartlandDSA
Contact:Claire Watson – heartland_cg@dsagsl.org, (573)334-5685

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Central Missouri Down Syndrome Family Network
Areas Served: Jefferson City Area
Meetings:
dates and times vary
Facebook: www.facebook.com/centralmodsfamilynetwork/
Contact: centralmodsfamilynetwork@gmail.com

Kate Basi (Columbia) – (573)-449-8342

Nancy Parsons (Ashland) – (573)-864-6223

Paula Backues (Jefferson City) – (573)230-7230

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Kirkwood/Webster Community Group
Areas Served: Kirkwood / Webster, MO and surrounding areas
Meetings: 3rd Thursday of the month at 7pm

Location: various locations around Kirkwood/Webster

Facebook: https://www.facebook.com/groups/kirkwoodwebstermoms/

Contact: kirkwood_cg@dsagsl.org

Stephanie Holmes – (314) 495-8388

Cheri Nienhaus – (618) 570-8485

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Dads Appreciating Down Syndrome (DADS)
Areas Served
: Greater St. Louis area
Meetings: First Friday of every month, 5:30pm; Patrick’s at Westport
Website: www.dadsstl.org
Facebook: www.facebook.com/pages/DADS-St-Louis-Chapter/134721146598480
Contact: dadsstl@dadsstl.org

Tony Sorocko – (314) 393-8548

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St. Charles County Community Group
Areas Served:
St. Charles, West County, and surrounding areas
Meetings:  Monthly at various locations.
Facebook: www.facebook.com/stcdsgroup
Contact: stc_cg@dsagsl.org

Karen Ryan – (314) 795-1419

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Down Syndrome Community Group of Northern Central Missouri
Areas Served:
Kirksville, Brookfield and surrounding areas
Meetings: dates and times vary
Facebook: www.facebook.com/dscnemo
Contact: kirksville_cg@dsagsl.org

Becky Pike – (660) 651-5139

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North County/ North City Community Group

Areas Served: North St. Louis County and St. Louis City
Meetings: dates and times vary
Facebook: www.facebook.com/NCDCSG.STL/
Contact: north_cg@dsagsl.org

Andrika White – (314) 587-6571

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SYNERGY DSAGSL Community Group
Areas Served: 
South County, Jefferson County, St. Louis City
Meetings:  Family and Friends Fun Night on the last Wednesday of every month

Location: Incredible Pizza, 5254 S Lindbergh Blvd, St. Louis, MO 63126.
Contact:  south_cg@dsagsl.org

Eileen Roth – (636) 326-1787

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Down Syndrome Group of the Lake of the Ozarks

Areas Served: Camdenton, MO and surrounding areas

**This group is looking for new leadership!  If you are interested in leading this group, please contact Christy@dsagsl.org**

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-ILLINOIS COMMUNITY GROUPS-

Metro-East Down Syndrome Alliance (MEDSA)

Areas Served: Bellville,O’ Fallon, Shiloh and surrounding
Meetings:
Second Monday of each month September through May; 6:00-8:00pm

Location: Cornerstone Christian Church, 775 N. Green Mount Rd. in Shiloh, IL, 62221
Facebook: www.facebook.com/MetroEastDSA
Contact: medsa_cg@dsagsl.org

Bob Lutz – (314) 458-6918 and Amanda Lutz – (618) 789-3664

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Southern Illinois Community Group
Areas Served:
Carbondale, Creal Springs, and surrounding areas
Meetings: Various dates and locations
Facebook: www.facebook.com/pages/Southern-Illinois-Down-Syndrome
Contact:  soil_cg@dsagls.org

Julie Anderson – (618) 944-1115

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-OTHER AREA DOWN SYNDROME GROUPS-
These are groups that may have their own not-for-profit 501 (c)(3)status, are in our area, are close and valued partners of the DSAGSL, and who often have overlapping membership.

Riverbend Down Syndrome Association
Areas Served:
Southwest Illinois
Meetings
: 4th Monday of each month; 6:30-8:00pm; LeClaire Christian Church, 1914 Esic Drive, Edwardsville, IL, 62025
Website: www.riverbendds.org
Contact: secretary@riverbendds.org, (618) 288-2555

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Down Country
Areas Served:
Hannibal, Palmyra, Quincy and surrounding areas
Website: www.upatdowncountry.com/index.php
Facebook: www.facebook.com/UpatDownCountry?fref=ts
Contact: info@upatdowncountry.com, 217-617-3568

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Down Syndrome Group of the Ozarks
Areas Served:
Springfield, MO and surrounding areas
Website: www.ozarksdsg.org
Contact:  info@ozarksdsg.org, (417) 885-9905 or (888) 655-5173

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Lincoln Land Down Syndrome Society
Areas Served:
Springfield, IL and surrounding areas
Website: www.lldss.org
Contact: lldss@comcast.net, (217)741-1832

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Central Illinois Down Syndrome Organization

Areas Served: McLean County, Bloomington/Normal, and surrounding areas

Website: www.cidso.org

Contact: info@cidso.org; (309) 452-3264