Down Syndrome Super Star #11 – Risher Family

In honor of Down Syndrome Awareness Month, the DSAGSL is recognizing individuals or groups who have gone above and beyond for an individual with Down syndrome and/or the Down syndrome community.There are so many superstars in our city! My choice for this year during Down Syndrome Awareness Month is the Risher family. For years, Suzie and Cathy Risher have put their heart and soul into fundraising for their annual golf tournament and for our Lydia Cox Memorial Bike Camp. They don’t do it for the recognition, however deserved it might be.  They simply set out to honor the memory of Lydia, who passed away at age three and made such an impact on them and so many others. Because of them, more than 100 individuals with Down syndrome have learned to ride a bike and now have a skill that they can enjoy for a lifetime with friends and family. Suzie, Cathy and their family also spend every single minute of camp volunteering and making sure families have a great experience. We’re so inspired and grateful for their hard work, and excited to expand our bike program to include our new bike club and a 2nd week of camp coming in 2015! Last weekend marked the 5th anniversary of Lydia’s passing, but a wonderful legacy has been created because of the Risher family. They are Down Syndrome Superstars in every possible way!

-Jeremie Ballinger, DSAGSL Executive Director


Down Syndrome Super Star #10 – Alicia

In honor of Down Syndrome Awareness Month, the DSAGSL is recognizing individuals or groups who have gone above and beyond for an individual with Down syndrome and/or the Down syndrome community.

I want to officially label someone near and dear to our family as a Down Syndrome Super Star. Her name is Alicia. She is the principal at Word of Life Lutheran School in St. Louis. Her loving heart and accepting attitude has opened the door of the school to our son, Sean. Alicia not only found a way for Sean to attend this parochial school, but was able to persuade the school board to fund an aid to help Sean successfully navigate his academics. She served as a classroom teacher before becoming the principal and was Sean’s third grade teacher. During that time she took the DSAGSL’s teacher specialist trainings along with another teacher at Word of Life. Even though Alicia is very busy being a principal, she always takes time to consider ways to improve and enhance Sean’s schooling. From helping adapt a music program with her can-do attitude to asking us to present an assembly for the entire school about Down syndrome awareness, Alicia defines a Down syndrome advocate!

-Robin Miller, parent of Sean

Down Syndrome Super Star #9 – Andi

In honor of Down Syndrome Awareness Month, the DSAGSL is recognizing individuals or groups who have gone above and beyond for an individual with Down syndrome and/or the Down syndrome community.

I would like to nominate Andrea (Andi) McCormick for DSAGSL Super Star! Andi began volunteering for us in June, leading our new monthly Therapeutic Play Group for our 0-3 year olds. She is always so cheerful, excited, enthusiastic and friendly. The babies and parents just love her! When we had the idea for a play group, I thought we would just have guided play time, but Andi went above and beyond my wildest expectations. She always comes prepared with amazing therapeutic toys and games. The little ones always have a blast. I was so appreciative of Andi leading this once a month group, I was amazed when she volunteered to do a second group in the St. Peter’s area! She is so caring and energized about the work she does, it is hard not to have a great time right along with her. It’s obvious she has a passion for working with our kiddos. Thanks, Andi, for being such an awesome Super Star!

-Erin Suelmann, DSAGSL Director of Programs

Down Syndrome Super Star #8 – Your Story Photoart

In honor of Down Syndrome Awareness Month, the DSAGSL is recognizing individuals or groups who have gone above and beyond for an individual with Down syndrome and/or the Down syndrome community.

I am nominating Melisa and Jeremy Keltner as Down Syndrome Super Stars. The Keltners own Your Story Photoart Studios and volunteer their professional photography skills to the DSAGSL often.

Each year, the DSAGSL produces a calendar featuring our self-advocates. In order for this to happen, we request that professional photographers donate sessions photographing the individuals with Down syndrome. The Keltners have come back for several years to help with this large project. The calendar, which is pre-ordered and purchased by countless members, wouldn’t be possible without amazing photographers like the Keltners.  I can’t stress how HUGE it is to not only donate their hard earned time and talent, but to produce the quality photos that they do.

The Keltners also help cover our photography needs for several of our large awareness and support events throughout the year! Photos are an irreplaceable component to sharing our mission and faces with our community. They help us tell our stories, successes and goals and without them it would be very difficult.

Lastly, the genuine compassion that Jeremy and Melisa share when working with our self-advocates and families is unmatched. They have become close to several families and really make it apparent that they both love their profession and working with the DSAGSL!

Hats off to Jeremy and Melisa Keltner for a continued job well done!

-Emily Gillardi, DSAGSL Marketing and Communications Manager


Down Syndrome Super Star #7 – Dr. Sutter

In honor of Down Syndrome Awareness Month, the DSAGSL is recognizing individuals or groups who have gone above and beyond for an individual with Down syndrome and/or the Down syndrome community.


I would like to nominate Dr. Lisa Sutter and her team of Aides (see list below) from the Special School District at Parkway North High School as Down Syndrome Super Stars.

Dr. Sutter and her team continue to excel at supporting individuals with Down syndrome and other developmental disabilities to be successful high school students by focusing on the strengths and individual needs of each student. Dr. Sutter and her team also understand that their students success extends beyond the classroom and into sports and extra curricular activities. Students are encouraged and supported to participate in school sports, activities and clubs. I am really excited about the opportunities that Dr. Sutter and her team have created for students with Down syndrome now and for middle school students coming up next.

Dr. Lisa Sutter
Ms. Elissa Buckvar
Mr. Glen Blattman
Ms. Ellie Weiss
Ms. Alyssa Tripp
Mr. Rob Newquest

-Barbara Arnold, DSAGSL Director of Operations, parent of Nathan


Down Syndrome Super Star #6 – The Village of the Blue Rose

In honor of Down Syndrome Awareness Month, the DSAGSL is recognizing individuals or groups who have gone above and beyond for an individual with Down syndrome and/or the Down syndrome community.

We think the Village of the Blue Rose is the best example of high expectations for people with Down syndrome in the state of Missouri.

There are four young adults with Down syndrome living and working at the Village, and they are very happy and satisfied with their lives. The three ladies live in one home and the men live in another. They are responsible for menu planning, shopping, some cooking, laundry and house cleaning at their homes. Everyone works at least 20 hours per week at the Lodge Restaurant Bed and Breakfast, which is on 60 acres overlooking the Mississippi River, five miles north of Clarksville, Missouri. They also help in the Red Barn Antique and Gift Shop and the Flea Market Barn as needed.

The Village is closed on Monday and Tuesday, so that is when the residents do their shopping, banking, laundry, house cleaning and take care of personal business. They attend a local church in Louisiana on Sunday and participate in other community activities as they occur. They do Special Olympic sports in Troy with the Lincoln County Roadrunners and Hockey with Gateway Locomotives in St Louis, as well as downhill skiing with in Eureka.

The Village has been at the Clarksville location since 1997, the first residents came in 2000. They are funded by their Antique and Collectible Shop in Florissant along with fundraisers, donations and volunteers.  It is a great place for adults with Down syndrome to live fulfilling lives!

-Donna Ringling

Down Syndrome Super Star #5 – Dr. Wakefield

In honor of Down Syndrome Awareness Month, the DSAGSL is recognizing individuals or groups who have gone above and beyond for an individual with Down syndrome and/or the Down syndrome community. Do you know an individual or group who fits this description? We want to congratulate them! Submit their name/contact info, a brief description and pictures to erin@dsagsl.org.

We started going to Dr. Wakefield seven years ago, when Olivia was 5 years old. The dentist office was not a place Olivia wanted to be. The first few visits were about Olivia getting used to the staff, equipment and procedures. Everyone was very patient.  Dr. Wakefield talked to Olivia and treated her with so much respect! She gained her trust and it wasn’t long before Olivia was going into the dentist office by herself while I waited in the waiting room!

-Christy Klaus, Family and Support Coordinator and parent to Olivia

 

Down Syndrome Super Star #4 – Ruth

In honor of Down Syndrome Awareness Month, the DSAGSL is recognizing individuals or groups who have gone above and beyond for an individual with Down syndrome and/or the Down syndrome community. Do you know an individual or group who fits this description? We want to congratulate them! Submit their name/contact info, a brief description and pictures to erin@dsagsl.org.

Ruth is the leader of our 4-H Club, the Mt. Zion Country Clovers in Marion county.  Ruth has two girls in our club with Down syndrome, one being my daughter Megan. In addition to NEVER telling these girls that they cannot do something, she actually strongly encourages them be involved at all levels of participation. She has prompted them to show projects at the local and state fairs, give demonstrations in front of the club, county, and state fair level, attend camps, be camp counselors, hold club offices, etc. Currently, our new president of the club is a girl with Down syndrome. This past year, my daughter was song leader for the club. She supports these girls in any way that they need it and has never made them feel “different.” She is fun, engages all the children, is positive, and has done all this while working full-time and earning her masters degree. I am in awe of her energy alone. Ruth is a great example of a Down Syndrome Superstar!

-Karen Miller, parent of Megan


Down Syndrome Super Star #3 – Ms. B

In honor of Down Syndrome Awareness Month, the DSAGSL is recognizing individuals or groups who have gone above and beyond for an individual with Down syndrome and/or the Down syndrome community. Do you know an individual or group who fits this description? We want to congratulate them! Submit their name/contact info, a brief description and pictures to erin@dsagsl.org.


This is “Ms. B” as Brian calls her. She is a teacher’s aide in my son’s Headstart classroom. I can not express how grateful we are to have her working with Brian. She goes so far above and beyond her duties in the classroom.  Ms. B even stays one day a week after school to give individualized extra instruction on skills Brian is working on in class and therapy. She went to the DSAGSL workshop in Cape Girardeau, and is planning on attending some seminars in St. Louis so she can further her education on Down Syndrome and help Brian maximize his potential.  The love and care she gives to Brian and our family is just amazing. We love and appreciate all of Brian’s teachers, but Ms. B has a special place in our hearts.

-Charlie Cox, parent to Brian

Bodies and Boundaries – by Linda Kronmiller

Linda Kronmiller is a parent of an individual with Down syndrome and leads the Bodies and Boundaries Workshop series.

Many years ago I attended a workshop about Social Stories.  It sounded like a great tool to use with my son Eric. I didn’t do anything with the information until several years later after meeting with a behavior therapist regarding some behaviors that Eric was exhibiting that needed to be addressed….right away!

Social Stories became a big part of our lives and they still are to this day!  Our very first experience using a social story was truly a miracle for Eric and our family!  We now have three binders chock full of stories that have helped Eric to learn appropriate behaviors.

The Bodies and Boundaries Workshop series will introduce you and your child/teen to this great tool in addition to some great visual supports to use with your child/teen.  There are four sessions where you will be creating a binder that addresses hygiene, public and private behaviors, appropriate touch and appropriate use of words.  The binder can be used daily or weekly in your home with your child/teen to reinforce appropriate behaviors when it comes to bodies and boundaries.  The binder is designed so that you can add additional information that may be very specific to your child/teen.  During the workshop you work directly with your child/teen creating the binder.  Persons who have already participated in the workshop really enjoyed it.

I hope to see you at the Bodies and Boundaries workshop!