Ask Megan – Tour of St. Louis Life Part I

This week, Megan gives us a look into her life at St. Louis Life. She shows us a few of the activities she participates in, and gives us a tour of her apartment. St. Louis Life is residential program for young adults with developmental disabilities. Tune in next week for Part II when Megan gives us a complete tour of the facility and we learn why Megan loves calling it her home.

 

The Down Syndrome Association of Greater St. Louis celebrates 2013 Walk in the Park

(press release)

(St. Louis) Families from St. Louis and surrounding areas will come together with the Down Syndrome Association of Greater St. Louis (DSAGSL) to cheer on the St. Louis Cardinals at the annual Walk in the Park event at Busch Stadium on Saturday, September 28. Walk in the Park brings together more than 2,400 people from throughout the St. Louis Metro area to support and celebrate individuals with Down syndrome, and to raise community awareness about Down syndrome.  Walk in the Park participants will attend a pre-game pep rally hosted by Team Fred bird, happening just outside Busch Stadium, before walking the warning track. Attendees will then join the crowd in cheering on the Cardinals as they battle the Chicago Cubs! This is not an event to miss!

Please join us for a family day to remember! Event day schedule is as follows:

• [PHOTO OPPORTUNITY] 3:00pm: Pep Rally across from Gate 1, parking lot    between Poplar & Spruce

• 4:00pm: Over 2,400 supporters walk the stadium warning track

• 5:30pm: Pre-game ceremony and ceremonial first pitch

• 6:15: Play ball! Cardinals vs. Chicago Cubs

Tickets cost $35. For more information about the event please contact Jeremie at the DSAGSL office 314-961-2504 or jeremie@dsagsl.org. More information about our organization can also be found at dsagsl.org

About Down Syndrome

Down syndrome is a genetic condition that causes delays in physical and intellectual development. 1 in 691 babies is born with Down syndrome, making Down syndrome the most commonly occurring genetic anomaly. With medical advances, appropriate education, and social acceptance, people with Down syndrome are capable of excelling in school, successful employment, independent living, and most importantly, being contributing members of society.

About the Down Syndrome Association of Greater St. Louis

The Down Syndrome Association of Greater St. Louis is a non-profit organization that works to benefit the lives of people with Down syndrome and their families through individual and family support, education, public awareness, and advocacy. We envision a community where all people with Down syndrome can achieve their full potential.

ADVOCACY UPDATE: Contact Maryland Governor Regarding Death of Ethan saylor

(information via NDSC)

Overview 

It has been almost five months since Ethan Saylor, a 26-year-old man with Down syndrome, died while being restrained by off duty law enforcement officers. Ethan was attending a movie at a local theater in Frederick County, Maryland – a place he visited quite often. When Ethan verbally refused to leave the theater after the movie ended, and while his support staff had gone to get their car, mall security was called, and Ethan was restrained face-down. Ethan’s staff reentered the theater, attempted to intervene to calm the situation and was refused. Ethan’s mother, who had been called by Ethan’s staff, was within a few minutes of the theater. Instead of picking her son up and taking him home, Ethan’s mother was re-routed to the local ER and was met with the devastating news that her beloved son was dead. A grieving family has lost their beautiful son.

Take Action

There has been much speculation about the details surrounding Ethan’s tragic death since it occurred. The only way to get a complete understanding of what occurred so that appropriate measures can be taken with regard to those involved, is through an independent investigation. The Frederick County Sheriff and State’s Attorney have already expressed their views that having Down syndrome was the sole contributor to Mr. Saylor’s death, rather than the security guards’ responses to Mr. Saylor, an individual with Down syndrome.

Please email, fax, and/or call Governor Martin O’Malley of Maryland to demand an independent investigation into the death of Ethan Saylor. 

Call Script Talking Points

Governor Martin O’Malley

Toll-Free 800-811-8336

Office:  410-974-3901

Hello, I am (state name and where you live). I am a (parent, sibling, grandparent, aunt/uncle, teacher, friend) of a person with Down syndrome. I am calling about Ethan Saylor, a man with Down syndrome who died while at The Regal Westview Movie Theaters in Frederick, Maryland in January.

I am requesting an independent investigation into Ethan’s death, so the facts can come out and those responsible can be appropriately prosecuted.

While waiting for his support staff to retrieve their car after the movie, Ethan decided he wanted to remain for another showing. He verbalized to the Officers his intent to remain and refused to leave his seat. The Officers attempted to physically remove him from the theater. He was restrained face-down by three plain-clothes officers moonlighting as mall security. Ethan died from asphyxiation from a crushed larynx while handcuffed. His senseless and avoidable death was ruled a homicide by the Maryland Medical Examiner. The Frederick County Sheriff’s Office (FCSO) and The Office of the Frederick County State’s Attorney neglected to conduct a thorough investigation of the facts involving the case. A Grand Jury was convened but failed to hand down an indictment against the officers involved.

Despite the Sheriff’s own public comment that the internal investigation has been completed and the officers have returned to full duty, the FCSO refuses to release investigation results to the family’s attorney, despite numerous written requests.  Ethan’s death was senseless and entirely avoidable.

Email/Fax Template

Governor Martin O’Malley

Email: governor@gov.state.md.us Fax: 410-974-3275

Dear Governor O’Malley:

I am writing as a (parent, sibling, grandparent, aunt/uncle, teacher, friend) of a person with Down syndrome regarding Ethan Saylor, a man with Down syndrome who died while at The Regal Westview Movie Theater in Frederick, Maryland in January. I am requesting an independent investigation into Ethan’s death, so the facts can come out and those responsible can be appropriately prosecuted. Despite the Sheriff’s own public comment that the internal investigation has been completed and the officers have returned to full duty, the Frederick County Sheriff’s Office refuses to release investigation results to the family’s attorney, despite numerous written requests.

While waiting for his support staff to retrieve their car after the movie, Ethan refused to leave his seat. He was restrained face-down by three plain-clothes officers moonlighting as mall security. Ethan died from a crushed larynx while handcuffed. His senseless death was ruled a homicide, but the Frederick County Sheriff and Prosecutor neglected to conduct a thorough investigation of the facts and the grand jury refused to indict. The prosecuting attorney’s office refuses to turn the results of the investigation over to the family’s attorney. Ethan’s death was senseless and entirely avoidable.

Sincerely,
[Insert contact information]